Be Heard: What Gluten-Related Research You Want to See

Be Heard! Speak out for celiac awareness monthEvery Monday in May, we’ll be asking readers to answer a single question and share their #myGFLstory. On Thursdays, we’ll share some of our favorite answers that we received. Here’s this week’s question: 

If you had the chance to ask scientists to research one aspect of celiac disease or gluten sensitivity, what would it be and why is this important to you?


Here’s what our readers had to say.


I want to know the link between celiac disease and infertility. My daughter is 11 years old and has celiac disease, it crushes me to know that she may not be able to conceive in her adulthood.” – Julia Roop via Facebook

“The neurological effects of gluten on balance and hearing loss.” – Linda Wilcox via Twitter (@GlutenFreeMe4U)

Is there any connection between strep throat in children and developing celiac disease? In other words, do children who get strep regularly and carry the gene, have an increased chance of developing celiac disease?” – Susan Cohen via Facebook


I would like to know the links between mental disorders and celiac disease. I went untreated for a very long time and had been diagnosed with so many different things that never really seemed to stick or fit the situation, all of which essentially disappeared and were retraced after the change in diet after finding out about my celiac disease.” – Carrie Iafrate via Facebook

I’d like to see celiac disease research re: eliminating carbohydrates as 80%+ do not heal on [the] GF diet alone.” – Lisa Cantkier via Twitter (@LisaCantkier)

Please locate the gene(s) we are missing to properly process gluten [and] then please devise a replacement therapy.” -Kristin Meaux via Disqus


“Why does celiac seem to be becoming more common in adults? I wasn’t diagnosed until I was 46!” – Natalie Preece via Facebook

“I would love to see research/studies done on the link between celiac and mental illness, or rather, the effects of gluten on the brain that cause mental reactions. And links between gluten and sensory disorders like SPD.” – Megan Mafitt via Facebook

World-wide, there are scientists researching celiac disease and the various aspects of digestion; the effects on our health, and also new drug treatments. I would really like to know if it is possible for a celiac digestive system to function ‘normally’ again, (like those who can consume gluten), after living a gluten-free life for many years? Having personally lived a gluten-free life for twenty years now, I am curious as to whether my digestive system has healed itself, or perhaps that is not possible? – GFchopstix via her blog

“I would ask that research be done along the lines of the whole autoimmune aspect of celiac disease. I’m comfortable with eating gluten free but the idea of being susceptible to other diseases concerns me.” – Yarimot Desta via Facebook



Be sure to come back on Monday, where we’ll have another question ready for you to answer. And remember: Speak out. Raise awareness. Be Heard.

Note: The views, opinions and positions expressed by our Be Heard commenters are theirs alone and do not necessarily reflect the opinions of Gluten-Free Living or its staff.


Don’t forget about our special month-long subscription offer, where you can receive a one-year subscription to Gluten-Free Living for just $20 — $5 of which will be donated to support celiac research. You’ll also be entered to win a 10-piece cookware set with bonus tools from Swiss Diamond. Subscribe today.




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