Go Beyond Celiac is an online database created by people with celiac disease, for people with celiac disease. Thousands of people have enrolled since it launched in 2017. Users can participate in research by sharing their stories and experiences and become involved in celiac disease research studies.
The new app now makes Go Beyond Celiac more interactive and engaging, and the mobile convenience should encourage more people to visit and share their experience of living with and managing celiac disease. This is done through surveys that can be filled out at users’ convenience. The app also offers information about events, educational opportunities and more. Go Beyond Celiac members will be able to see how they compare to others as a more complete picture of celiac disease emerges from the data collected.
“Understanding how people have been impacted by celiac disease is some of the most important information researchers and doctors need in order to accelerate celiac disease research,” said Alice Bast, CEO of Beyond Celiac. “Go Beyond Celiac provides us with the ability to tell them what life is like before, during and after our diagnosis.”
In addition to driving research that leads to a better understanding of how celiac disease develops, the Go Beyond Celiac online tool provides opportunities to increase timely diagnosis and improve the diagnosis experience, inform research about the burden of living with celiac disease, accelerate the development of treatment alternatives to the gluten-free diet and ultimately help find a cure.
“While awareness of celiac disease is higher than ever, people living with this genetic autoimmune condition struggle to be taken seriously. At Beyond Celiac, we are working to address this need. We are a bridge between the community and the researchers who are focused on finding answers to our challenges,” said Bast.
Beyond Celiac is a leading celiac disease organization working to drive diagnosis, advance research and accelerate the discovery of new treatments and a cure. For more information on Beyond Celiac, click here.